A fellow heart mom put this special video together for Heart day of some amazing Asian Heart babies. Miss Ellie is in the video along with Max sharing about Ellie's broken heart!
Congenital heart defects are the top killer of newborn babies in China due to high incidence and inadequate treatment. It is estimated that there are 300,000 babies born each year with a Congenital Heart Defect. Due to their one child policy there are likely thousands more births that are not reported. Out of the 300,000 births, only about 70,000 of those babies will ever receive medical attention for their congenital heart defects due to low awareness, limited medical resources and financial reasons. Thousands more are born still or will die shortly after birth due to lack of medical attention. While a simple scan to diagnosis CHD would cost roughly 100RMB the cost of a surgery to repair their child's defect could cost them more then 10 years of their household income. Many families do not have the financial resources to afford such surgeries. Families often make the difficult decision to abandon their baby in hopes that the orphanage will find the baby and help repair that child's heart defects. Unfortunately, that is not the story for many children. They will often be taken to the orphanage and will be scanned to confirm the congenital heart defect, but many still will not receive their life saving surgeries. Many will continue on palliative and hospice care while at the orphanage. Some of these children will be deemed inoperable or terminal. Without immediate medical treatment for the heart defects the child's lungs will be severely and irreparably damaged. These children will then become "paper ready" in hopes that a family will come forward to care for these medically fragile children. Here are the faces of the survivors, who against all odds continue to fight and win the battle of living with a Congenital Heart Defect.
We continue to pray for those sweet little ones that wait, the ones that have no hope without a family!
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